Having an autoimmune disease is a big deal. When I first got diagnosed, I remember saying to my doctor “oh, so that’s it? I’m glad it’s nothing more serious!” She looked at me and said “Stefani, this is serious.”
I didn’t necessarily think it was just a cold or a virus that would pass, but it definitely didn’t occur to me that it is something that, if not handled correctly, can cause serious damage to your body.
As it stands, there are over 80 autoimmune diseases that doctors are aware of right now. They basically turn your immune system against your body, where instead of fighting off viruses and pathogens, it fights your organs or tissues. The most prevalent ones are probably Type 1 Diabetes, Lupus, Rheumatoid Arthritis, and Celiac Disease, and it is estimated that up to 50 million people America have at least one autoimmune disease.
I say ‘at least one’ because once you develop one of them, you’re more likely to easily develop more. Apparently they all like to party together! Only it’s a party that’s only fun for the guests, takes advantage of the host, and destroys the house.
An autoimmune disease can develop in many ways, either from genetics, a virus or infection, lifestyle, diet, environmental factors, and more.
Many doctors believe that most of these diseases can be traced back to leaky gut, which allows foods and other things into your bloodstream and starts freaking out your immune system. I was diagnosed with Hashimoto’s at age 28, and I’ve spent every day since then doing a complete overhaul on my lifestyle, diet, stress, and reading anything I can get my hands on.
My autoimmune disease is partly genetic (thanks, mom), partly from vaccine-induced immune dysfunction, and partly because of years of crash diets and hormonal rollercoasters. Hashimoto’s is when your immune system attacks your thyroid gland, which is connected to basically everything else your body does. Because of this, Hashimoto’s can have a TON of different symptoms, and they’re not the same for any two people.
If you’ve recently been diagnosed with an autoimmune disease, please don’t panic. There are so many things you can do to help yourself get better! My doctor treats many patients whose disorders actually go into remission!
If you start up with your old diet and all the things that made you sick in the first place, then you will get sick again. It will come back. Treating an autoimmune disease through natural methods such as supplements and changing your diet takes dedication and so much time. Time to read books and articles, time to see doctors, time to research recipes and plan out your new way of life. But it will be worth it once you get on the healing path!
So what does an autoimmune disease look like? For me personally (remember, not everyone has the same symptoms) I probably look normal from the outside, but I have a hard time losing weight, depression, anxiety, irritability, memory loss, heart palpitations, and several vitamin deficiencies. I also have a hard time getting up in the morning, low energy, and I drain quickly. It’s frustrating for others to think I look healthy, but I don’t feel healthy.
My doctor has put me on a regimen of many supplements, and I’m on a very strict diet. No gluten (a MUST for anyone with an autoimmune disease!), no dairy, no sugar, no soy, no alcohol. It also means avoiding anything that you’re allergic or have a sensitivity to, so that your gut can fully heal. I can’t have rice, almonds, cashews, hazelnuts, cranberries, & scallops.
I also take many supplements for immune system healing such as digestive enzymes, vitamin C, vitamin D, vitamin B12, and magnesium. I use essential oils as well, such as lemongrass and Young Living’s Endoflex blend, which are fantastic for thyroid health. I apply them (diluted) directly to my neck every morning. I take probiotics and drink homemade kombucha daily as well, and try to incorporate homemade bone broth at least a few days a week!
Now, this may sound awful to you. I understand, trust me. There are some days that I just want to put the kids to bed and eat a cupcake with a glass of wine. But if I want to get better, I can’t. This strict part of my diet is only for 3-6 months.
Until my gut starts healing, I can’t eat things that are going to damage it. And I don’t want to, because I want to get better! The great part is that after the first couple of weeks, your taste buds change and you don’t want to have that other stuff anymore. I honestly never realized how delicious some vegetables could be until I gave up all of the junk food.
If I can make progress changing my whole diet around, then anybody can. If you’ve been diagnosed with an autoimmune disease and your doctor hasn’t put you on a healing regimen, I suggest you find a natural practitioner, get lots of blood work done so you know the whole picture, and figure out how to get better. Getting better is not the same as feeling better because you were put on medication with no other changes. Getting better means healing!
Not every doctor fully understands autoimmune diseases and that you can heal them instead of treating them. You may need medication to go along with your lifestyle changes and that is perfectly fine! But don’t accept it as your only option, because you can heal yourself if you have the right support and determination.
When I get frustrated, I go back to my WHY. The reason why I want to heal, to go through the painful process of supplements and cutting food out and eating broccoli every day (ugh) is so that I can be healthy enough to play with my boys. To be healthy enough to go on walks and hikes and trips with my husband. To be healthy enough to be around for my sons’ weddings and grandchildren. To be healthy.
Let’s take back our health!
I am not a doctor and this information should not be considered medical advice. You should seek the advice of your own medical professional for your own situation.
Anya says
I loved this post on autoimmune disease. I can so relate to a lot about what you wrote. Hugs to you, mama. Love your “why”.
Stefani says
Thanks, mama! It’s so common for people with invisible, chronic illness to feel isolated and alone. I just want to reach people and let them know they’re not alone and restore hope! 🙂
Amy says
I am also a mom living with underactive thyroid.Sometimes I am full of all these symptoms.It is really frustrating.But,when you know how to overcome the symptoms,at least it is fine.
Thanks for sharing this inspirational post together with your experience..
Stefani says
Amy, I know how you feel! The symptoms come and go and you look fine but you feel horrible. I hope you’ve got some healing going on too! <3
A Mama in the Making says
I was diagnosed with Hashimoto’s a few months ago and have changed my diet quite a bit. No gluten, dairy, soy, etc. I don’t eat a lot of refined sugar, but even honey, maple syrup, and coconut sugar are still sugar, right? Any snack advice?
Stefani says
Hi! Sorry to hear about your Hashimoto’s, but I’m glad you’ve taken the initiative and changed your diet! But you’re right, honey, maple syrup, and coconut sugar are still sugar and should be used sparingly. As far as snacks go, I don’t really eat any because of leptin resistance, so I need to go 4-5 hours between eating. However, when I do have snacks, I try to stick to fruit, nut butter, or some raw veggies. It may not sound fun, but it gets easier. You eventually forget about other foods and just eat what you’re allowed to eat without another thought. Good luck in your changes, mama! XO
Nicole | The Professional Mom Project says
Wow so sorry you’re going through all of this. I have thyroid cancer so I can relate to so many of these feelings and issues. I’ve been to a naturopathic dr who has also told me to go gluten, dairy and egg free. I did for a while and then we went to Disney World… I’ve got to get back on it for sure. Take care!
Nicole | The Professional Mom Project
Stefani says
So sorry to hear what you’re going through! We all fall off the healthy eating from time to time, but you’ll get back on. Thankfully, we know that our food directly affects our health! Thanks so much for visiting ????
Jennifer | www.feastingonjoy.com says
Girl, I can relate to how you feel. I was there! I also didn’t realize when I was diagnosed with Hashimotos that is was a big deal. My difference was that my doc was so nonchalant about it. I actually didn’t research anything until a long time later. Even going gluten free didn’t help me with my Hashi’s – although it did get rid of my Asthma! Woot! Woot! I still eat GF 10 yrs later and will always because you’re right – it’s a must! Anyway, I just wanted to write to encourage you that there is a light at the end of the tunnel. You will heal if you stick to it and truly discover your root cause and then remove it. I had several root causes almost all of which have been removed. The last one on the list which I have seen amazing improvements with is getting rid of parasites. When I was lying on my death bed (literally) 5 years ago I knew that I had a choice to lay there and do nothing and succumb to conventional medicine or research and learn as much as I could and then implement what I learned. Praise the Lord, for His grace in directing me on my path to healing. Now my pain has become my purpose. You will get there Stefani! I love reading your posts. Thanks so much for sharing!
Stefani says
Jennifer, thank you so much for your encouragement! Some days, it feels overwhelming to have to keep fighting, but that’s my only choice. I love that quote- “my pain has become my purpose”. XO
Kathleen says
Hi Stefanie! Thank you so much for your post! For the last six years my husband and I have felt like I must be suffering from hashimoto, but I was told “I don’t look like I have hashimoto”. My question to all of you is who to turn to when your doctor is a closed minded brick wall? I have every symptom plus a ten inch distended stomach after eating certain foods. At my wit’s end.
Thank you,
Kathleen
Stefani says
Hi Kathleen- if your doctor won’t listen, you need to find one who will test you! Your dr works for you, not the other way around. ????Send me an email at [email protected] and I’ll help you find one!
Kathleen says
Thank you so very much! Your going over and beyond. How I wish I could hug you!!!
Lindsey says
I love your approach and outlook! Thank you for sharing. I was diagnosed with Multiple Sclerosis this year and have been struggling to find the right path. Doctors are often not very knowledgeable about the nutrition piece of healing. I’m also in NWA and we’re generally underserved in the medical community. Glad you decided to make it home!
Stefani says
So true- I hope you find the path you need soon! And thank you, I do love NWA so much!